MS Drug “Fampyra” Should Be Available to Sufferers
Statement by Brendan Griffin TD (FG) Kerry
Sunday, June 15th, 2014.
KERRY Fine Gael TD, Brendan Griffin, this week tabled a Dail debate on the need for the availability of the MS drug, “Fampyra” on the HSE’s Community Drug Scheme.
Having raised the matter through Parliamentary Question last week, Deputy Griffin also tabled a special Topical Issues debate on the matter on Tuesday. The drug has been available for free from manufacturer, Biogen Idec, to MS sufferers for the last two years as part of a clinical trial. The trial period is due to end on June 30th, but as “Fampyra” is not covered by any HSE drug scheme, MS sufferers could be forced to pay up to €500 per month for the drug or else go without.
Deputy Griffin said that the drug is having a very positive impact on the quality of life of many of the MS sufferers taking the drug and asked that the Department of Health, the HSE and the drug manufacturer would come together to find a solution to allow the MS patients to keep taking it.
He said that many MS sufferers who had stopped taking the drug for any short period noticed a regression of their conditions and that all efforts must be made to help these people. Deputy Griffin also read to the Dail a testimony from the daughter of an MS sufferer in Galway about the importance of Fampyra for her mother’s mobility and fatigue.
In his response to Deputy Griffin, Minister of State at the Department of Health, Alex White, said that he understands that the drug company intend to resubmit the drug for inclusion in the Community Drug Scheme. If this happens, following Deputy Griffin’s request, he said that he will deal with the application as quickly as possible.
Deputy Griffin has requested Biogen Idec directly to state if they intend to resubmit Fampyra for the Community Drug Scheme and in the mean time, if they would extend the period of free supply to the people who want to keep taking Fampyra. He awaits their response.
“I will be doing more on this issue this week and will keep working on this to help ensure a positive outcome for the MS Sufferers affected. This is a serious quality of life issues for many people in Kerry and throughout Ireland and I am doing my level best to help.”
The link to this debate is here:
For further imformation please contact Brendan 087-6528841